A Journey with Love and Laughter

Read about our family as we journey through life as a family, with siblings, school and spina bifida, and lots of fun and laughter along the way!

Monday, August 31, 2015

More Cottaging

Before the end of the summer we had another trip to the cottage (it is my last trip before school because I'm working labour day weekend).

Katheryn loved the rest and time to read her books


Nick liked playing outside with Rory


Nick got a new boomarang toy that we needed to learn how to use. And we needed a lot of space to use it.
I tried throwing it around but got it caught in the trees a couple of times. Nick just likes playing with it as Captain America.


Sam liked that there were other dogs there to take the attention of Rory (photo credit to Nick)

Katheryn has been getting so great and brave in the lake. She likes sitting and watching the waves.

My dad made a new ramp for Nick to get in and out of the cottage himself.


Nick thought that it was great! (I'm so thankful for my parents for doing this)





Our lake is a deeper lake, so the kids had fun swimming.


Katheryn can swim without her floaties, but she is still nervous (and I am too).
When we were at the shore I took everything off and tried to get Nick more comfortable.


And what is better at the cottage than a big pile of dirt!


Tuesday, August 25, 2015

Check-up and fun

We had our annual check up with Dr Rutka our neurosurgeon.

Nick has been more interested in his body and how he was born that I told him that we were going to meet the doctor that did his first surgery on his back, and put the shunt in his head. Nick wanted to see the hospital that he was born at (which is right across the road from Sick Kids)

Going downtown mean another ride on the train, which Nick was very excited about
We were also going to try to take the Subway as well. The TTC is somewhat accessible; some stops are accessible, but not all of them. It is difficult to find where you are going during rush hour, we were just past rush hour so we had some room to move around and try to find where we were going.



There is construction at Union Station, so there was a lot of turning around. But eventually we found out way (Nick wanted to know why we were going around in circles). But we got on the subway and to the right accessible stop (not the hospital one though).

While we waited for our appointment, there was a book talking about transportation (train, bus, subway, car and bike). Nick read the whole book with me!


He also played with some of the small kid toys... I told him he was too big for them
When Dr Rutka came in, he had a bunch of residents with him. All Nick could do was stare at these residents that were crowding at the doorway and looking at him.


Nick couldn't think of any questions he wanted to ask.
In the end, everything is good. His shunt is good. We talked about Nick's need for increased bracing and if we should be concerned about this (tethered cord). So we are going to have another MRI in the next 6 months or so.
When I was filling all the paperwork out, I was asking if we could try to do a non-sedated MRI. So I put that in the paperwork, and will talk to them more when we have the appointment.

Now that all the hopsital stuff out of the way, it was time for some fun!

First stop, street meat. We had a couple of different places around Toronto that we could visit. Nick decided on the Museum


So we walked up to the ROM (farther than I remember, and the accessible subway stop was a lot farther than I thought)
They had a Pompeii exhibit that I wanted to see. Thanks to the Easter Seals Access2 card our admission was discounted (Nick's companion... me... got in for free).

Nick and I had fun trying out toga's (they are much bigger than you think they are).


Nick wasn't sure at first, but finally tried it on


Nick wasn't that interested in all of the artifacts that were there, but we did have a whole conversation about the penis and nipples on some of the naked statues.

They had a huge screen with a blowing up volcano and ash in the background.


They had some of the casts of bodies, I wasn't sure what Nick would think. He was interested in the models of how the casts are made and wanted me to take this picture


After Pompeii we got to visit the dinosaurs


The T-rex

A giant turtle


And Nick wanted to see the pterodactyl


We also saw a new dinosaur they just discovered. A type of triceratops.


We explored a bit more and then headed to the gift shop and did some Christmas shopping (yes you read that right).


Then it was trying to find the accessible subway stop (I was too tired to walk back to Queens Park and the Museum stop is not accessible). After walking the wrong way a couple of times I did find the right stop. Walked into the station and had the guy behind the glass start yelling at me that we were in the wrong place and needed to go around the corner.
I went outside and looked around the corner, but it was just a driveway. I stood outside the station looking very lost and confused, with Nick asking why we were stopped. I'm trying to look at the TTC website and can't find it (I can only find the address I'm standing at). I'm sure I'm looking very lost and confused and a lady asks if she can help.
The subway is not exactly 'around the corner' more like down the street, down another street and then up the street. She was so nice to walk with us until we found our way.

Then it was TTC and Go Train during rush hour to get home.
My feet so much! But Nick got all checked out and had a fun day

Wednesday, August 19, 2015

Our new addition

We have a new member of our family!


Her name is Aurora, but we are going to call her Rory for short (and it's easier for her to learn). She is a Bernese Mountain Dog (just like Sammie) and she is 8 weeks old.


We got her from a breeder up at the cottage, Mount Magic and have been getting updates every week for over a month, and counting down the days until we can  get her.
We decided to introduce Sammie to his new sister at a neutral location, a local park.


He wasn't all that impressed with her.


That's ok, She made up for it by looking really cute.


This was the closest she could come


When we got Sammie we didn't have any children, but we remember the nipping and the tearing up the toys. And Sam actually ate our wall.... 4 times. So we were ready with lots of toys, and practicing with the kids that she will be nippy and she doesn't mean to hurt you, but she is playing and is only a baby


It was fun to go shopping for her, and buy all kinds of pink-girly toys collar, bowl and leash. Yes, we went all girly!


Nick has been really enjoying her and walking with her. She likes to go underneath his walker as he is walking, and tries to eat his wheels.


Once we got home the kids really like cuddling with her


I think someone is in love


She is really good. An excited puppy, but also loving and playing and still cuddly.


 Even Sammie is starting to come around


Sunday, August 16, 2015

Marvel's Universe

As a treat for the kids for a great year at school we got them tickets to the Marvel Universe motorcycle show.
Nick's favorite Avengers character is Captain America. I got him a Captain America costume from ebay, but it came the wrong size, so he couldn't wear the whole costume, but he got to wear the mask as a costume


Because we knew that the show was going to be loud, we had earmuffs for Nick to wear. They were great! I don't think Nick would have enjoyed the show otherwise. 


Katheryn had a pair as well, but she just wore them for the beginning of the show. Once she was used to the noise she took them off.
They had face painting, so Katheryn wanted to be the Hulk


I got tickets that were 1 accessible and 1 companion, and then regular tickets right in front. When we arrived we found out that the accessible and the companion tickets were actually across and aisle from each other.
Luckily all the seats hadn't been sold. So I just pulled my chair over and sat beside Nick together.

The show started off loud... and with Loki


 There is a story line, and all of the Avengers (but not Giant Man or Wasp), Miss Marvel, some of the X-Men and Spider man, and some of their specific bad guys



The use all parts of the area and up on the bleachers (but not in the crowd)


 Nick was so excited when Captain America came on


 We got them a couple of souvenirs during the intermission.


Katheryn's favorite character was Black Widow


It wasn't a motorcycle show, but there were lots of times when the motorcycles were out and watching some tricks


Most of the show there  was no Hulk. It was just Bruce Banner. But of couse the Hulk showed up at the end


The kids had a great time at the show!


On the way home we took pictures of each other.
Katheryn took this one of Nick and me



Nick took this one of Kyle.


A great day out on the town!
Avengers Assemble!